Saving Medicaid Dollars and Improving Care
A small population with huge costs, children with complex conditions and severe involvement require seamless care, and few hospitals can provide that kind of 24-hour coverage on the average awarded Medicaid reimbursements.
However, the St. Joseph's Children's Hospital Chronic-Complex Clinic in Tampa has joined a growing network of hospitals across the country to find a payment formula to cover the extra...
Cerebral Palsy and the NYC Ballet: In Praise of Dance
Albert Einstein said dancers are the athletes of God. And St. Augustine, “I praise the dance, for it frees people from the heaviness of matter and binds the isolated to community….O man, learn to dance, or else the angels in heaven will not know what to do with you.”
NYC Ballet discovered that ancient wisdom is still true today, when they responded to a mother’s idea about a...
Advocacy as Art
If you look up ‘Medicaid Waiver’ on the internet, you’ll find the four primary types available to states across the nation. You’ll also find myriad links and sites available to aid the application process, and the collateral industry that has emerged to facilitate these programs. If you’re like me, you’ll soon be lost.
For parents of adult children with developmental...
A Quiet Giant Among Us
For some people, when they speak, we stop to listen whether we intended to or not. There is a power behind their words that comes from a lifetime of doing, of quietly practicing the values they speak of. Such a person is Jean Vanier, founder of L’Arche, and a giant among advocates for people with disabilities.
This year Vanier was honored with the Templeton Prize, and on March 11 he delivered an...
Community Action at its Finest
The receding snow banks are creating inviting sidewalks, and which kid’s first response is not “where’s my bike?” Children with physical disabilities want to ride just as much as any child, and they should. Sadly, adaptive trikes are far too rarely covered by Medicaid or insurance, even with a strong case for the therapeutic benefits of cycling.
Thankfully, there is a growing...
Special Colors for Special People
Kids love color. They notice it in nature, clothing and the classroom. So why not put that color on an Activity Chair? Available new this year, Rifton has six color choices to brighten up the seat and the back of the Activity Chair. So make your child’s chair fun and extra special with one of these choices: pink, red, blue, green, tan or purple.
The "Adverse Birth Outcome"
I didn’t know Henry until this morning, but he’s been in my mind all day thanks to what his mother shared so honestly about having him.
In case any of us need reminding, the Washington Post carried her beautiful reminder that they are children first, their potential to learn and meet milestones far more important than their disabilities. And she takes it even farther: She is...
Dancing with the Stars at the Center for Disability Services
ABC’s Dancing with the Stars gets great ratings, and it’s even entertaining at times, but nothing compares to the stars at the Center for Disability Services in Albany, New York. Paired with professional dancers, these performers make their way across the stage in Pacer gait trainers and Activity chairs in a showcase of music, dance and artistic expression.
Support from The Arts Center of...
Found Today on the Web
Every time a major media source writes a serious story about the challenges faced by those with developmental disabilities we should be encouraged and reminded that our society has made strides in accessibility and acceptance.
Facilities like the Lee Specialty Clinic in Louisville Kentucky are to be commended for creating an environment where these challenges are more easily met and the DD population...
World Cerebral Palsy Day: Ideas For Change
Because today is World Cerebral Palsy (CP) Day I want to call your attention to an initiative led by a group of charities aimed at changing the world for people living with CP and their families. With about 17 million people across the world living with CP and 350 million people closely connected to them, the potential impact is great. World Cerebral Palsy Day asks for submissions of ideas in the form of...