News Happy New Year! December 22, 2015 by Elena Noble, MPT
It’s been a full and memorable year in so many respects. Thanks to all of you who brightened 2015 for us with your stories and, most of all, with your dedication. We wish you a blessed new year.
News The Kennedys and Disability Rights in America December 11, 2015 by Clare Stober
Every now and then along comes a book that changes our understanding of history by shedding new light on familiar themes. For example, we think we know the story of the Kennedy family and its place in U.S. history. And we think we understand how our attitudes to disabilities have evolved over the years in our country. But take a moment and read the following statement carefully, spoken in 2007 by Eunice...
News Here’s what we didn’t see. October 16, 2015 by Carmen Hinkey
Two weeks ago we highlighted a story about Michael Keating, the young man who was singled out by Pope Francis for blessing. Now we don’t normally just rerun news items, but this thoughtful follow-up story that just appeared in the Washington Post is too good not to share with you. And it provides a window into the life of a special boy and his beautiful family, written with a sensitivity that is...
News Take It from the Pope September 29, 2015 by Carmen Hinkey
Even for a man whose every day is managed and choreographed to the moment, the last six days in the United States must have been extraordinarily micro-managed. All the more surprising then, that the Holy Father, Pope Francis, took opportunities to break out of script and send a message to the watching world. On Saturday, after landing in Philadelphia, the Holy Father halted his motorcade—his entire...
News Spotlight on SCI Rehab September 18, 2015 by Elena Noble, MPT
By an act of Congress, September is Spinal Cord Injury Awareness Month. And well it should be: one person becomes paralyzed every 48 seconds—in the U.S. alone. Advancements in treatment continue today but we have a long way to go. To draw attention to the needs of SCI victims (and before September is gone) I’d like to tell about a recent visit I made to a fabulous clinic in Tampa.   Built...
News Everyone is Unique. Really? September 01, 2015 by Carmen Hinkey
Next month brings us to National Down Syndrome Awareness Month. The industry news is full of inspirational stories of how children and adults with Down syndrome have enriched the lives of their families, peer groups, communities, and a wider acceptance of those with a third copy of the twenty-first chromosome. The entertainment and fashion industries have done a great deal to further this effort...
News Saving Medicaid Dollars and Improving Care August 10, 2015 by Carmen Hinkey
A small population with huge costs, children with complex conditions and severe involvement require seamless care, and few hospitals can provide that kind of 24-hour coverage on the average awarded Medicaid reimbursements. However, the St. Joseph's Children's Hospital Chronic-Complex Clinic in Tampa has joined a growing network of hospitals across the country to find a payment formula to cover the...
News Cerebral Palsy and the NYC Ballet: In Praise of Dance July 06, 2015 by Carmen Hinkey
Albert Einstein said dancers are the athletes of God.  And St. Augustine, “I praise the dance, for it frees people from the heaviness of matter and binds the isolated to community….O man, learn to dance, or else the angels in heaven will not know what to do with you.” NYC Ballet discovered that ancient wisdom is still true today, when they responded to a mother’s idea about a...
News Advocacy as Art April 07, 2015 by Carmen Hinkey
If you look up ‘Medicaid Waiver’ on the internet, you’ll find the four primary types available to states across the nation. You’ll also find myriad links and sites available to aid the application process, and the collateral industry that has emerged to facilitate these programs. If you’re like me, you’ll soon be lost. For parents of adult children with developmental...
News A Quiet Giant Among Us March 24, 2015 by Carmen Hinkey
For some people, when they speak, we stop to listen whether we intended to or not. There is a power behind their words that comes from a lifetime of doing, of quietly practicing the values they speak of. Such a person is Jean Vanier, founder of L’Arche, and a giant among advocates for people with disabilities. This year Vanier was honored with the Templeton Prize, and on March 11 he delivered an...
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