Advocacy as Art
If you look up ‘Medicaid Waiver’ on the internet, you’ll find the four primary types available to states across the nation. You’ll also find myriad links and sites available to aid the application process, and the collateral industry that has emerged to facilitate these programs. If you’re like me, you’ll soon be lost.
For parents of adult children with developmental...
Rifton TRAM Plays Cameo in Wedding
Over the weekend we were treated to one of those heartwarming stories that never get old. Augie Nieto, indefatigable ALS survivor, fulfilled a pledge to walk his daughter down the aisle at her wedding. This remarkable accomplishment was made possible by Augie’s determination coupled with the Rifton TRAM. Rather than try to describe the scene, watch this segment from The Today Show and then read the...
MOVE for Adults in Action in Bakersfield
Bakersfield ARC (BARC) MOVE for Adults program is the perfect solution for supporting adults with intellectual and developmental disabilities. On my first visit to Bakersfield, California, in 2008 to take the MOVE (Mobility Opportunity Via Education) Basic Provider’s course, I was introduced to BARC. The center had just become a MOVE certified adult model site for visitors to see firsthand how the...
Tips & Advice
Lifespan Care for People with Disabilities
Today a colleague sent an email that I found astounding and disturbing. It came from a physical therapist working with young adults with developmental disabilities. Her efforts to get adaptive equipment for them had been frustrated. In her words: “More often than not I’m told that there is no point in introducing/reintroducing the use of standing frames and gait trainers with this age group...
Tips & Advice
Choosing a Summer Camp for Your Child with Special Needs
This excerpt was taken from an article written by Douglas Lathrop in Kids on Wheels, a publication now no longer in print, but because I think the ideas are so good I want to pass them on.
For your child, the foremost benefit to attending summer camp is, quite simply, having fun. Beyond the fun aspects, spending time at camp can strengthen a child’s sense of independence and ability to socialize with...
Tips & Advice
Offering an answer to that agonizing question: “Who will look after our child when we are gone?”
Parents of a child with disabilities are usually their child’s primary advocates. At each stage of their child’s life they monitor programs and progress, and pursue strategies to accommodate their special healthcare needs.
As parents grow older and have to confront the realities of their...
Making the Case for Complex Rehab Equipment Not Just Durable Medical Equipment
A new publication called Complex, written and superbly photographed by Mark Sullivan, a VP at Invacare, has been issued by NRRTS and it’s well worth the read.
It tells the story of several remarkable people whose lives have been dramatically improved by complex rehab technology and makes the case eloquently why the complex rehab industry needs to be protected from the cost-cutting frenzy that has...
Tips & Advice
Funding Pediatric Adaptive Equipment and the Role of Developmental Planning
Obtaining funding for pediatric adaptive equipment can be challenging. But how you document a child’s needs, can significantly improve your chances of success. Using a developmental planning approach that encompasses both current and future adaptive equipment needs can make all the difference.
Planning for physical needs, cognitive needs and equipment
Developmental planning is the process of using...
The ICF and People with Developmental Disabilities
The International Classification of Functioning, Disability, and Health (ICF) has been developed by the World Health Organization (WHO) as a comprehensive framework in which to classify the varying aspects of a person’s disability and health. With the ICF, the focus is turned towards achieving the best possible activity and participation level in society despite the disability.