Trisomy 13

News Their Name Is Today August 16, 2014 by Maureen Swinger
Request your free copy of Their Name Is Today: “This book showed me just how connected are so many facets of living that till now occupied separate rooms in my heart: teaching, disabilities, motherhood, work, play … taking life in all its raw, beautiful, exhausting, exhilarating truth. Read it. Savor it. Then share it.” (From the review by Maureen Swinger)
Stories Celebrating an Amazing First Year July 05, 2011 by Elena Noble, MPT
Congratulations Jamari on your first birthday! Jamari has Trisomy 13, but defied the odds to reach a one year milestone. Here’s his story. Contributed by Jon Harrison, Jamari’s dad “Jamari is to be offered aggressive treatment. He is to be treated as a child without a “fatal condition”. Some babies with Full Trisomy 13 do survive. Please give Jamari the opportunity to be...